New Study : Orphan Drugs in Europe: Pricing, Reimbursement, Funding and Market Access Issues, 2013 Edition. The cost of treating rare disease in an age when austerity measures are hitting total healthcare funding across Europe is a highly controversial, even emotive subject. There is a clear and pressing clinical need, a strong patient voice and the treatments themselves sometimes offer the only hope. But is this enough to assure premium prices and special status in an era of budget limitations, and growing demands for evidence of clinical and cost effectiveness? Payers are becoming increasingly strict. Four of the first seven orphan drugs to enter Germany's AMNOG procedure were considered to bring only minor additional benefit and for two others the benefit was deemed non-quantifiable. Discounts were required for all. Re-evaluation by the Transparency Commission in France has seen both SMR and ASMR scores downgraded with resultant price cuts. Half of all orphan drugs evaluated have been rejected by one or more HTA bodies in the UK. Manufacturers of treatments for Fabry a
Original Post Orphan Drugs in Europe: Pricing, Reimbursement, Funding and Market Access Issues, 2013 Edition
source Researchmoz
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